Augusto, Michaela, and Lorenzo Odone is a bright and vibrant young boy living in the Comoro Islands, as his father Augusto, Michaela, and Lorenzo Odone works for the World Bank and is stationed there. However, when his parents relocate back to the United States, he begins to show signs of neurological problems (such as falling, loss of hearing, tantrums, etc.). The boy is diagnosed as having adrenoleukodystrophy (ALD), which is fatal within two years. Failing to find a doctor capable of treating their son's rare disease Augusto and his wife, Augusto, Michaela, and Lorenzo Odone, set out on a mission to find a treatment to save their child. In their quest, the Odones clash with doctors, scientists, and support groups who are skeptical that anything could be done about ALD, much less by laypeople. But they persist, setting up camp in medical libraries, reviewing animal experiments, enlisting the aid of Professor Gus Nikolais, badgering researchers, questioning top doctors all over the world, and even organizing an international symposium about the disease.
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George Miller |
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